Axios-WeCareJourney make it easy for rare disease patients
Kuala Lumpur, 27th May 2022 – Pioneering healthcare access company Axios International just announced the signing of a MoU with WeCareJourney, a non-profit organisation dedicated to supporting spinal muscular atrophy patients in Malaysia.
Under the MoU, both parties will support and increase access to rare disease patients in Malaysia via innovative solutions.
“At Axios, we firmly believe partnerships are effective tools to enable healthcare access. How do we come together to improve access in Malaysia and comprehensively address adherence challenges without putting the burden on one single player?
“Today, we’re here with WeCareJourney to offer rare disease patients access to treatment solutions and provide support to overcome adherence barriers. Through this partnership, our hope is to support the longer-term patient benefits and the holistic patient journey for the rare disease community,” says Ms Roshel Jayasundera, Senior Director of Global Consulting, Axios International.
SMA is a genetic condition that affects nerve cells and impacts muscle movement. Annually, 50 babies are born with it in Malaysia.
Access to healthcare remains a multi-faceted challenge to the community, with obstacles in accessing treatment and medical attention. Treatment options are few and extremely costly, ranking them among the world’s most expensive drugs.
Care for patients
“As a parent to 2 children with 3 different rare conditions, I can share with you that rare diseases can be so heartbreaking, and how difficult the journey can be. I co-founded WeCareJourney to give care and support to enable rare disease families to live active, engaged and hopeful lives,” said Mr. Edmund Lim.
Vital medicines
Lim founded WeCareJourney after his son was diagnosed with SMA in 2011, bridging key awareness, advocacy, research, and medical and social support gaps for the wider SMA community in Malaysia.
“Axios International is a leading global organization with a strong track record in establishing and running programs, that I consider as “lifelines”, for eligible patients to the vital medicines they need.
“Today, I am excited to sign this MoU with Axios, which will bring Axios and WeCareJourney together to make a difference to the lives of patients and families with rare diseases.”
The MoU was signed at the The role of digital healthcare in providing holistic support solutions beyond the hospital setting conference convened by the healthcare access solutions provider.
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